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I think having World Down Syndrome Day on 3/21 is very clever. I really wanted to mark this day with a special tribute to Lucy, and I thought about all the things I got wrong about her. When I first heard the words "Down Syndrome" I thought about all she wouldn't be; it never occurred to me to think of all the things she would be.
So here is a list of 21 things about Lucy that surprise me:
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1. She is funny, and knows it.
2. She has learned to bat her eyes when trying to get her way.
3. She is not always nice, but is in fact a grump most of the time.
4. She does not like everyone.
5. I thought she would always be sick, but she's not. Lisa pointed out that her recovery time after her heart surgery was pretty amazing, and I have to agree. She bounces back fast!
6. I thought that other kids wouldn't like her, but they do.
7. She has a personality that would fill a room.
8. She is artistic (see the pic of her wall for evidence).
9. She is wily & cunning. Always waiting for the door latch to be off, so she can make her big escape.
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10. She is not afraid to get in the fray and mix it up physically.
11. Just because she isn't verbal, doesn't mean that she doesn't understand you.
12. I thought her delays would be horrible, but they aren't. We have just come to accept that she will do things on her own time, and we continue giving her the support she needs.
13. She is awesome at pretend play, and has perfected dying during
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a duel.
14. She loves to play guitar.
15. She loves to read and look at books.
16. She grasps concepts quickly.
17. She is a terrific problem solver.
18. She loves to listen to music loudly in the car, but only songs that she approves of.
19. Her neck doesn't look any different than ours. :)
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20. Without words, she knows how I am feeling.
21. She is totally aware of the world around her, and is constantly participating in it. I thought the world would be passing Lucy by, but in fact it is quite the opposite. Lucy leaves her mark wherever she goes.
I know some people think that "special" children are sent to "special" parents, but Jake & I aren't special. We are just 2 lucky people that happened to get a tremendous gift, and she spends everyday making us look like amateurs. :)