Thursday, March 12, 2009

Lucy Sittin & Playin

It has taken Ms. Lucy a long time to get to this point, but she has done it...sitting straight up and balancing on her own! Yeah! Most of you know that her muscle tone is our biggest challenge, so when she hits a marker it is a big event in our house. Now Ms. Nosy can see & touch things at a new level!


Sunday, March 8, 2009

Time Change Sucks!

I hate changing the time! I don't care if it is falling back or springing forward, it all makes me crazy and it takes me weeks to adjust!! Just leave the time alone!! AAAGGGHHH! Anyone else?

Exploring UT

UT held an awesome event on Saturday. It opened it's doors to the public, and every field of study did something cool: lectures, games, exhibits, crafts and games. Needless to say, we spent most of the day at the Engineering school. We were able to see a robotic dog play soccer, Ethan powered a light & a TV by riding a bicycle, and the kids + Dad got to design a safety jacket for an egg. FYI, the "jacket" worked; the egg did not get smashed when it hit the target, but then the egg fell out of the "jacket" and broke! It was a fun day, and it was really cool to see how large UT really is. Made me miss college...for about a minute.




we wore Lucy out!

Saturday, March 7, 2009

Spring has SPRUNG!!!

I saw my first patch of Bluebonnets today!!! It must be Spring! Don't forget to turn your clocks forward tonight!

Tuesday, March 3, 2009

By-Bye

Lucy waved by-bye for the first time today. It was a pretty exciting milestone. She had her annual assessment last week, and she is doing pretty well. Cognitively she is only about 1 month behind, and physically...well physically we have some work to do. Which is not a bad deal because we can give her more muscle tone, we can't give her more brain activity. This Down-Syndrome thing is a trip, because we have no idea what to expect. When she was born we only had this doom and gloom outlook, but she has proven us wrong every step of the way. She truly is the light of our family, and brings us all such happiness.
I love looking at pictures of older kids with DS and seeing that they are just like everyone else (check this LINK out). The funny thing is that kids with DS are not like everyone else, the real science of it blows me out of the water. An extra chromosome makes such a difference in the human makeup. I once heard people with DS referred to as modern day mutants, X-men if you will. To live one's life always having to prove that they can be "normal", and yet still deal with differences that others don't have...yeah that sounds like the X-men alright. So we try and not put Lucy in a box, not to label her abilities or rank her achievements...just to enjoy & appreciate her as she is. Society makes that hard, but we have Ethan & Rhys to jump through those hoops! :) Maybe tomorrow I can post a clip of our X-Woman waving by-bye!

Wednesday, February 25, 2009

Occupational Therapy

Lucy was pretty cute in her OT session today, but you be the judge....